From Hemophilia News Today: A newly designed platform based on the principle of “reverse vaccination” could be used to prevent the development of an immune response that blocks the effectiveness of treatments for hemophilia and other disorders. Continue reading: ‘Reverse Vaccination’ May Help Prevent Immune Response
This year’s event featured 250 patient organizations and 367 meetings with Congress. Original Source: Advocates Lobby US Congress During Virtual Rare Disease Week
Can PI patients get the vaccine and will it work for them? A doctor who advises the Immune Deficiency Foundation offers her perspective. Source article: COVID-19 Vaccines and Primary Immunodeficiency
Doctors have had success using treatment methods that are already widely known to be effective for inflammatory symptoms in children, including intravenous immunoglobulin, or IVIG. Source: Should Parents Be Freaking Out About a New COVID Syndrome Found in Kids?
Examining the Application of Immunoglobulin in Multiple Disease States: A Review of Evidence Source: Examining the Application of Ig in Multiple Disease States | IgNS – Advancing Ig Therapy Practice
Update on Crohn’s Disease from IG Living or
Source: Hemophilia A Patients Using Hemlibra Show Gains in Joint Health, Trial Data Show
Since hemophilia was discovered, it has been accepted as a male disease. No one questions that a man is struggling with hemophilia. A man with a bleeding disorder living in a developed country is rarely denied access to healthcare. When he receives a diagnosis, he is told that he has a severe, moderate, or mild […]
Preventive treatment with Hemlibra reduces bleeding rates in children younger than 12 with hemophilia type A regardless of inhibitor status, data show. Source: Data: Hemlibra OK in Kids with Hemophilia A Regardless of Inhibitor Status