The Immune Deficiency Foundation (IDF), founded in 1980, is the national nonprofit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with PI through advocacy, education and research. There are approximately 250,000 people who are diagnosed with PI in the U.S., and thousands more go undetected. Persons with PI successfully […]
This past weekend, the New York Times published an opinion piece in its ‘News Analysis’ section titled ‘What is the Blood of a Poor Person Worth?’ that examined the practice of compensating source plasma donors. For the primary immunodeficiency (PI) community, this was yet another article that—while guaranteed to generate clicks and comments—is likely to […]
Some patients have difficult peripheral access, so it’s a good idea to refresh yourself on the tips and tricks to find a bashful vein. There are ways to help make bleeding disorder infusions smoother. Source: Tips & Tricks for Accessing Problem Veins | HemAware
An intriguing article for those children who love sports and who are living with a mild hemophilia condition. Whether they share a love of hockey or other sport, this story may be just the bit of inspiration they need to help adapt while living with hemophilia disease. Source: New York Rangers Coach David Quinn – […]